Shannon Langmead, RN, MSN, CRNP, CNRN (Chair)
Clinic Coordinator, The Johns Hopkins Comprehensive Neurofibromatosis Center
Baltimore, Maryland

Shannon Langmead is an Adult Nurse Practitioner and Clinic Coordinator for The Johns Hopkins Comprehensive Neurofibromatosis Center. Shannon completed her undergraduate studies at Saint Francis University in Pennsylvania and Villa Julie College in Maryland where she received a BA in Spanish and BS in Nursing. She worked as a bedside nurse in Neurology and Neurosurgery in the Johns Hopkins Hospital for 8 years before completing her Master of Science Degree in Nursing at The Johns Hopkins University School of Nursing and joining the NF team. Shannon has also worked as Part-time Clinical Faculty for The Johns Hopkins University School of Nursing. She is a Certified Neuroscience Registered Nurse and is a Board Certified Adult Nurse Practitioner.  

Shannon evaluates and manages patients with NF1, NF2 and Schwannomatosis. Her special interests include pain management and developing social support networks for patients. She also volunteers with Brainy Camps at Camp New Friends hosted by Children’s National Medical Center and NF Mid-Atlantic.

Jaishri Blakeley, MD
Professor of Neurology, Oncology and Neurosurgery (Neuro-oncology)
Director, Johns Hopkins Comprehensive Neurofibromatosis Center
Director, United Counsel of Neurologic Subspecialties (UCNS) Neuro-Oncology Fellowship, Johns Hopkins
Baltimore, Maryland

Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology and Neurosurgery, Director of the Johns Hopkins Comprehensive Neurofibromatosis Center, and the Neurofibromatosis Therapeutic Acceleration Program (NTAP). NTAP was founded in 2012 with the goal of dramatically shifting the landscape of clinical care for people with Neurofibromatosis Type 1 associated plexiform and cutaneous neurofibromas via the core tenants of: focus on therapeutics, foster collaboration, facilitate open and timely sharing of results, and streamline the research process. Dr. Blakeley’s research expertise is in the development of clinical trials for nervous system tumors and specifically, clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers and incorporation of patient focused, functional endpoints. Her research, mentorship and programmatic efforts are all in the service of improving outcomes for the patients for whom she is honored to provide care for as an active clinician in neuro-oncology.

Connie DiDomenico, PNP-BC
Neuro-Oncology Nurse Practitioner
The Children's Hospital of Philadelphia
Philadelphia, Pennsylvania

Connie DiDomenico is a graduate of the University of Pennsylvania School of Nursing, BSN 1994 and MSN 1999. Her career has been primarily in pediatric oncology. Connie practiced as an inpatient and outpatient nurse at the Children’s Hospital of Philadelphia (CHOP) for 3 years while she completed her nurse practitioner program in Acute Chronic Pediatrics. Oncology at CHOP offered her the opportunity for many roles as an advanced practice nurse including clinical nurse specialist and nurse practitioner. Connie currently practices in Neuro-Oncology and has done so for the past 12 years. Her professional interests include management of patients with retinoblastoma, Neuofibromatosis and clinical research.

In accordance with the Food and Drug Administration, the speakers have disclosed that there is the potential for discussions concerning off-label uses of a commercial product/device during this educational activity.

Any person who may contribute to the content of this continuing education activity must disclose relevant relationships (and any known relationships of their spouse/partner) with commercial interests whose products or services are discussed in educational presentations. A commercial interest is defined as any entity producing, marketing, re-selling, or distributing health care goods or services consumed by, or used on, patients. Relevant relationships include receiving from a commercial interest research grants, consultant fees, travel, other benefits, or having a self-managed equity interest in a company.

Disclosure of a relationship is not intended to suggest or condone any bias in any presentation but is made to provide participants with information that might be of potential importance to their evaluation of a presentation.

Planner:
Shannon Langmead, RN, MSN, CRNP, CNRN–has disclosed that she is a consultant for the AstraZeneca Nurse Advisory Board.
Bryan C. Taylor, PharmD–has no relevant financial relationships to disclose in relation to the content of this activity.

Authors/Presenters:
Shannon Langmead, RN, MSN, CRNP, CNRN–has disclosed that she is a consultant for the AstraZeneca Nurse Advisory Board.
Jaishri Blakeley, MD–has disclosed that she is a consultant for Abbvie, Astellas, AstraZeneca, and Springworks. She receives grant/research support from Bristol Meyers Squib, GSK, and Sanofi.
Connie DiDomenico, PNP-BC–has no relevant financial relationships to disclose in relation to the content of this activity.

Reviewer:
Tammi L. Skelton, MSN, CRNP, NP-C–has no relevant financial relationships to disclose in relation to the content of this activity.